Havasupai Tribe v. Arizona State University

E941922

Havasupai Tribe v. Arizona State University is a landmark legal case involving the misuse of Indigenous DNA samples in genetic research, which raised major ethical and legal questions about informed consent and tribal sovereignty over genetic material.

All labels observed (1)

Label Occurrences
Havasupai Tribe v. Arizona State University canonical 1

How this entity was disambiguated

Statements (55)

Predicate Object
instanceOf human subjects research controversy ⓘ
legal case ⓘ
research ethics case ⓘ
alleges breach of fiduciary duty ⓘ
fraud ⓘ
intentional infliction of emotional distress ⓘ
lack of informed consent ⓘ
misrepresentation of research purposes ⓘ
negligence ⓘ
unauthorized secondary use of samples ⓘ
violation of civil rights ⓘ
aroseFrom collection of blood samples from Havasupai tribal members ⓘ
diabetes research project with the Havasupai Tribe ⓘ
use of samples for studies beyond diabetes ⓘ
concerns Indigenous DNA samples ⓘ
cultural harm ⓘ
data ownership ⓘ
genetic research ⓘ
group harms in research ⓘ
human subjects research ⓘ
defendant Arizona Board of Regents ⓘ
Arizona State University researchers ⓘ
involves Arizona Board of Regents ⓘ
Arizona State University ⓘ
Arizona State University researchers ⓘ
Havasupai Tribe ⓘ
jurisdiction Arizona ⓘ
United States ⓘ
legalOutcome settlement ⓘ
legalSignificance became a key case in Indigenous research ethics discourse ⓘ
highlighted need for specific informed consent for genetic research ⓘ
influenced institutional review board practices ⓘ
raised questions about ownership of genetic material ⓘ
used as a teaching case in bioethics and law courses ⓘ
mainSubject informed consent in genetic research ⓘ
misuse of DNA samples ⓘ
privacy of genetic information ⓘ
research ethics with Indigenous communities ⓘ
scope of consent for secondary research use ⓘ
tribal sovereignty over genetic material ⓘ
plaintiff Havasupai Tribe ⓘ
relatedTo Indigenous data sovereignty ⓘ
community-based participatory research ⓘ
genomic data governance ⓘ
tribal sovereignty ⓘ
secondaryUseIncluded inbreeding studies ⓘ
other genetic studies not consented to by the tribe ⓘ
population migration studies ⓘ
schizophrenia research ⓘ
settlementIncluded monetary compensation to Havasupai Tribe ⓘ
restrictions on future use of samples ⓘ
return of DNA samples ⓘ
support for health and education initiatives for the Havasupai Tribe ⓘ
timePeriod 1990s ⓘ
2000s ⓘ

How these facts were elicited

Referenced by (1)

Full triples — surface form annotated when it differs from this entity's canonical label.

Havasupai → notableLegalCase → Havasupai Tribe v. Arizona State University ⓘ